I am still trudging through this new life of mine.
In November, I started a Fatigue Study. This is not a SLEEP study. They know radiation fatigues patients, but they don't really have a clear picture of WHY. I did this through a Colorado University, but at the Denver campus. I actually participated in two studies, but with the same university. Both had to do with fatigue. The first one I had to go through assessments, take my blood, workout twice a week, and cardio 150 minutes of moderate or 75 vigorous a week. It was definitely in the moderate zone. TAKE YOUR OWN BLOOD? It was a super cool thing where I attached it to my arm, pressed a button to poke me, and then it would drain into this tube. I would then mail it back to them. Every couple of weeks prior to my assessment, I would have to fill out these surveys. Statements like Are you tired, Does your fatigue not allow you to do things and then it would be a 1-5 answer of not at all (1) to extremely (5) and 2-4 in between. At the start of the study, I was in the 4-5 zone. By the end of the study, I was in the 1-2 zone. Exercise helps fatigue is what I learned. For the most part, I've kept up with it.
The second portion of that study with them was two assessments on a treadmill. I would fly to Denver the night before and they would put me up in a hotel. The next morning, I would go over to the campus, right next to the hotel, have my blood taken, walk on a treadmill for 36 minutes, have my blood taken immediately after, and then 30 minutes after. While walking on the treadmill, every three minutes I would give them my exertion level. For these two sessions, they paid me $200/each session. Primarily, it paid for my plan ticket, but honestly anything to further cancer research I am game for. The last session was at the end of February, and I stayed the rest of the week to visit with my cousins.
A couple of weeks ago, I thought I felt a lump in my armpit. I had an immediate doctor's appointment and she didn't feel anything, but just to be certain I went and had an ultrasound yesterday (Wednesday, March 25th). The rad tech nor the doctor saw anything concerning. I had been putting all my schedules on Dad's Schedule so my sisters could see them. I accidentally put the ultrasound on there and tried to delete it, but my sister has notifications for everything and saw it. I was trying to be sneaky and not worry anyone. So, all good in that area.
On Wednesday, I also broke up with my lymphademaologist (which isn't what she is, but that's what I call her). It was a good breakup because we believed I was at the right spot for treatment. I might have issues, but I know how to manage it and if super terrible, I can just get an appointment with her. Radiation really mats scar tissue and well we all know I have a pretty significant scar across my boob as well as where they took the lymph nodes out. Working out helps keeping the pain and swelling down so I will just keep moving along that route.
I have been wavering on whether to continue to take this pill for the next 5-10 years or go off it and hope for the best. I'm kinda sick of the side effects and only about 10 months into it. I have an appointment coming up and we will see. My hair isn't growing in fast enough for my liking, but also one of the side effects is hair loss. UGH.
I have appointment coming up on April 4th for a chest xray. I still get winded super easily, so we want to see if there is scarring either from radiation or that wonder respiratory infection I had. Let's just hope I'm out of shape.
I think the most uplifting news is that hoping in the next couple of weeks, I will be returning to full duty. I have been back to work full time since about November but not wearing my extra 27 pounds of vest and gun belt. I had to pass a medical and complete some training before getting the go ahead. I have two more things to accomplish before returning. I gotta say I'm looking forward to returning but not looking forward to putting on the 27 extra pounds.
That's it for now. Until next time....
That was a nice update! ☺️ Hope all and only good things keep coming your way!
ReplyDeleteGlad you're still progressing to healthy.
ReplyDelete❤️ thanks for sharing this Sara
ReplyDeleteThank you for sharing and for volunteering. I hope you have continued good health
ReplyDeleteThank you for the update!! You probably never thought you would be so happy to return to work!
ReplyDeleteGreat right up Sara.
ReplyDeleteGreat right up Sara.
ReplyDeleteYou got this -
ReplyDeleteThat’s great progress!
ReplyDeleteI look forward to reading of the Fatigue Study results & admire your willingness to go the extra mile to participate in the name of science.
ReplyDeleteIt was great seeing you. Despite your displeasure with the hairdo, I think you are a remarkable person.
Peace/love