Friday, December 20, 2024

Wound, chemo, radiation

I have come to realize that Bimbo and I relationship is about two days long and then the warning alarms go off.  Blockage alarm, low pressure, battery, etc.  And since this morning around 1am, about every hour it would alarm blockage or low pressure.  I got up and 'slept' on the couch.  I say 'slept' because really, I laid there, dozed, awoke by alarm, silenced it, dozed, and on and on until 6am.  When I finally gave up and got up.  

We had already planned on getting up at 6:30am because we had an 8:45am appointment in Durango with the oncologist.  We were truly hoping that I would not have to go through chemo, but I've come to the realization that everything that can go wrong will go wrong in this battle.  We had been waiting for the oncotype score to come back and it was 34.  Which of course is high.  She said the oncotype score is related to genes and well our family loves the cancer gene.  With an oncotype score of 34, I have a 22% chance of caner coming back somewhere in my body.  By doing a combination of chemo and radiation, that percentage drops to 4-6%.  I'll take losing my hair, puking, etc. over the 22%.  

We met with the oncologist and were given two options.  The red devil and the taxotere versions of chemo.  The red devil is just like it sounds – the devil.  The second one not as much shitiness and does not affect the heart, but still all the same side effects.  After realizing I was carrying a wound vac and looking at the wound, she decided that the taxotere would be a better option as to lessen the chance of another infection. 

There would be 4 sessions 3 weeks apart.  The chemo would take place before the radiation.  But none of this is going to take place until the wound is 100% healed. 

Also, she stated I would need to drink 2L of liquid a day.  I asked if vodka was an option.  She laughed and did not give me a disbelieved look.  But I was joking.  However, for those of you that truly know me, me having to drink 2L of water a day is going to be so difficult not to mention spending most of my day in the bathroom.  But it can be other stuff like Gatorade, juice, etc.  Just not alcohol or caffeine.  Guess I will start prepping for that now and work up to 2L. 

While at the hospital (all my doctors are at the hospital), we checked in with the surgeon to see if the wound vac bandage could be replaced.  They put in a referral to the wound care clinic in the hospital (we have been using the one in Cortez and they operate M-Thursday).  We went down there and after some talking, we realized they were not going to be able to fix it.  How a wound care clinic doesn’t have wound vac supplies is odd to me but so be it.  So, we drove home.

I disconnected the machine, took a shower, and Murray packed it.  The plan was to remove the machine on Sunday anyway, so we are just a few days earlier.  Now, I am packed with collagen and gauze.  Every three days, we will repack with collagen and gauze.  Monday, the 30th, I’ll go back to the wound clinic. 

But for me the exciting part is that I can function somewhat as a normal human without having to lug around that machine.  And there is a good chance, I’m probably going to get a good night’s sleep this evening.    

And that is where we stand for now.  

Until next time….


9 comments:

  1. Bridgette4:33 PM

    Continued prayers and positive vibes my friend!! πŸ™πŸΌ❤️

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  2. Anonymous4:39 PM

    Praying! I hope you get the much needed sleep you need for your body to heal πŸ™πŸΌπŸ™πŸΌ♥️♥️

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  3. Anonymous4:49 PM

    so so sorry, you have to go through all this. Continued prayers coming your way!! πŸ™πŸ™πŸ™πŸ€—❤️

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  4. Anonymous6:02 PM

    Healing love to you Sara!

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  5. I gave a lot of the red devil at the U of IA Hospitals when I worked there....I'm glad there is an alternative for you. Hang in there!!! xo

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  6. Anonymous6:57 PM

    Hang in there Sara! SO sorry you have to do chemo. And drink a ton. Tazo makes a
    prickly pear tea that’s really good. Happy solstice to you and Murray! -Petra

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  7. Anonymous7:02 PM

    Continued thoughts and prayers headed your way! You got this!

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  8. Anonymous8:27 PM

    Dang it, deleted my post. 😑 Sara, thank you for the update. I've been praying for you both. I'm sorry you have to do chemo. I was hoping you could skip that part. Keep your spirits up and here's to vodka when you're all done. Love you

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  9. TiffanyN10:09 PM

    I really hate this for you! Continued prayers &. F cancer!

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